Health experts call for the GDPR revision for cross-border health data sharing
Health experts are urging EU policymakers and legislators to review the EU’s legal data protection framework, the GDPR, which is hampering the sharing of pseudonymised health data outside the EU and the European Economic Area (EEA).
The report calls for adapting or expanding the existing legal framework to overcome challenges imposed by data protection regulations.
These guidelines by the European Data Protection Board recognise that, in the context of the current pandemic, the “public interest derogation” may be available for international data exchanges for research purposes. However, as health is a national competence, the multiple and conflicting national rules make health data sharing, both within and outside the EU/EEA, challenging.